My son was born with bicuspid aortic valve which has developed a leak. He is now on enalipril 2x per day to decrease the afterflow and buy some time before he has to have surgery, but the doctor has discussed our options and we basically have to choose when it comes down to it, whether we go with a valve repair, or valve replacement and if we do replacement we can do mechanical or donated valve or The Ross procedure. And he will probably be under 5 yrs old when this needs done, (he's 2 now) so I would like to keep him off of coumadin (blood thinner) so he can play sports in school if he would like. But I also want to do what is the best for him long term. Any advice would be helpful. thanks
Wow, okorder /... Good luck to you and your son and I am very sorry you are having to go through this difficult decision.
OK I HAVE A 4 YEAR OLD THAT HAS AEROTIC STENOSIS WHICH MEANS THAT AT THE AGE OF TEN HE WILL HAVE TO HAVE A VALVE TRANSPLANT. THE OPTIONS RIGHT NOW ARE A PIG VALVE, WHICH LASTS AS LONG AS A PIG WOULD LIVE, OR A SYNTHETIC VALVE WHICH CAN CAUSE CLOTTING. BUT I WATCHED A DOCUTMENTARY ON A HEALTH SHOW ABOUT A MONTH AGO, AND DOCTORS HAVE INVENTED A WAY TO GROW A HEART VALVE USING CELLS FROM YOUR KIDS HEART. NOW IT WONT BE APPROVED FOR ANOTHER 10 YEARS BUT I JUST THOUGHT I WOULD LET YOU KNOW THAT IT HAS ALLREADY BEEN TESTED AND WAS SUCESSFULL, IF I HEAR ANYTHING ELSE I WILL TRY TO FIND YOUR EMAIL AND LET YOU KNOW. IM PLANNING ON DOING THE PIG VALVE UNTILL THE MEDICAL BOARD APPROVES THE REAL VALVES, THAN I WILL HAVE THAT DONE TO MY SON, SO I WILL NEVER HAVE TO WORRY ABOUT IT AGAIN. GOOD LUCK, I KINDA KNOW WHAT YOUR GOING THROUGH. keep in touch with me, and let me know.