My eight month old daughter was just diagnosed with pulmonary valve stenosis. Anyone have an experience with this? Did you have cardiac catherization? Did that fix the problem?
I had a different heart condition in high school. Mine was called superventricular tachicardia (SVT) but it required a cathedar in my heart. I had the ablasian surgery twice. We're not sure if it didnt work the first time or if there were two seperate problems, but after the second surgery I havent had any problems. Speak more to your doctor, he should be able to tell you more information and answer all of your questions. For me the surgery meant putting me to sleep and inserting the cathedar through three arteries, one on each side of my shoulders and one in the groin. I have very small scars that arent very noticable and I went home the next day.
I was diagnosed with pulmonary valve stenosis at around the age of your daughter. I am now 22 years old. Around the time of my diagnosis the doctors did many tests and I had several cardiac catherizations. The doctors found out from all of these tests that my pulmonic valve was so tight and was about to close (I had severe pulmonic stenosis; some is not severe therefore surgery would not be required probably). The doctors performed open heart surgery when I was 3. They totally removed my pulmonic valve. This is the only valve that you can live without for a period of time. The valve usually has to be put back at some point because without a valve there is some leakage to the right side of the heart. For me, it will be within a year or so. Some are much earlier when they have to have it replaced and some are later. It all depends on the individual. One huge recommendation is to go to a highly ranked hospital even for the tests. Hope this helps!
I don't know if it's the same but my son had aortic stenosis when he was born. After many tests it just went away and no they did not have to do a catherization. Never caused him any problems either.
